Glioblastoma aka GBM

Glioblastoma aka GBM is a podcast by the Glioblastoma Research Organization that highlights the stories of our community, from Glioblastoma Warriors, to caregivers, medical advisors, and more. Glioblastoma aka GBM is hosted by Amber Barbach, who founded the Glioblastoma Research Organization in 2018, after her father was diagnosed with and passed away from Glioblastoma.

This podcast is an exploration of stories and personal experiences, and is not meant to be taken as medical advice of any kind. If you have questions, always consult with your own medical providers and healthcare team. You are warmly invited to connect with the team at the Glioblastoma Research Organization, and share your own stories and experiences. For more information, please visit gbmresearch.org

Health & Fitness
Medicine
Personal Journals
26
Piecing the Puzzle
Dr. David Langer, chair of neurosurgery and department director at Lenox Hill Hospital sits down to chat all thinks surgery, stoicism, and synchronous learning.
52 min
27
Living On Your Own Terms
8+ year glioblastoma survivor, Greg Link, joins us to chat about his journey with brain cancer, how therapy has helped him along the way, and how he's advocating for and helping others living with GBM.
35 min
28
Starting with Zer0
Catherine Ivy and Dr. Nader Sanai of the Ivy Brain Tumor Center sit down to chat about all things Phase 0 clinical trials & more.
42 min
29
Hope is a Powerful Drug
Diane Pathieu and Nick Adamski chat about the importance of PMA, a Positive Mental Attitude, when dealing with a brain tumor diagnosis.
59 min
30
Saved by Broadway
Dr. Henry Friedman, Deputy Director of Preston Robert Tisch Brain Tumor Center at Duke University sits down to chat all things neuro-oncology, research advancements, basketball, & more.
46 min
31
Barbie Blank Coba aka Kelly Kelly
WWE star, influencer, model, and now mom-to-be, Barbie Blank Coba joins us on Glioblastoma aka GBM to discuss her dad's journey with GBM.
44 min
32
360° Approach to Fighting Cancer
8+ year glioblastoma survivor, Dave Bolton, joins us to discuss how his cancer diagnosis ignited a fire to fight cancer with a 360° approach - and to start a foundation to change the lives of others.
58 min
33
From Onstage to the Operating Room
Dr. Randy D'Amico, Director of the Brain and Spine Metastasis Program at Lenox Hill Hospital joins us to chat about how he went from onstage to the operating room - and everything in between.
60 min
34
A Spoonful of Paolo
3x Telly award-winning and Webby-nominated personality, Paolo Presta, joins us to kick off Season 2 of Glioblastoma aka GBM and shines a light on his experience as a caregiver with his mother and glioblastoma.
58 min
35
Love You, Dad
In this season finale of Glioblastoma AKA GBM, Amber talks about how her family dealt with her father’s diagnosis and subsequent surgery. She peels back the curtains on founding GBMRO.
46 min
36
Compassion in Community
Vikram Bhaskaran and Rohan Ramakrishna join Amber Barbach on Glioblastoma aka GBM to discuss Roon, its mission, and how it’s changing the game for navigating glioblastoma.
40 min
37
Annealed by Adversity
James and Meghan join Amber Barbach on Glioblastoma aka GBM to share their experience of losing a parent right before your eyes, and how they live with the grief.
52 min
38
Let Food Be Thy Medicine
Tiffany Meyer joins Amber Barbach on Glioblastoma aka GBM to share insights on how she treats cancer patients and shed light on the importance of balance within the body.
46 min
39
GBM Knows No Age
Tracy and Oscar Gills join Amber Barbach to talk about their experience as caregivers and parents of an infant glioblastoma patient, and how they coped with the loss of their child.
57 min
40
How A Mustache Funded Research for Brain Cancer
Colin Gerner is joining Amber Barbach on Glioblastoma aka GBM to talk about his experience as a caregiver, and how he used his grief to push for change and advancement.
35 min
41
Turning Scientists into CEOs
Shawn Carbonell, MD, PHD joins Amber Barbach to talk about his experience as a neurosurgeon in training, how his nonprofit is carrying out its mission, and details about his drug.
42 min
42
The Importance of Research on Rare Cancers
Dr. Komotar joins Amber Barbach on Glioblastoma aka GBM to share a neurosurgeon’s perspective and expertise on glioblastoma.
35 min
43
Positivity is THE Essential Ingredient
David Fitting joins Amber Barbach to talk about his experience as a three-time survivor, how the support of his friends and family pushed him through, and the importance of being your own advocate.
73 min
44
Care for the Caregiver
Dr. Stephanie Silberman is a sleep psychologist with a great deal of experience working with caregivers, she is here to talk to us today about taking care of yourself while you’re taking care of a loved one.
44 min
45
Food as Medicine
Chef Lorena Garcia joins Amber Barbach on Glioblastoma aka GBM to talk about how food intersects with physical and spiritual health, her experience as a caregiver, and how glioblastoma changed her family’s life.
39 min
46
Pushing the Needle on GBM Treatments
Dr John Boockvar joins Amber Barbach on Glioblastoma aka GBM to talk about his experience as a doctor treating glioblastoma, how the associated technologies work, and what moving forward looks like.
41 min
47
Slay One Dragon at a Time
Laura Dill joins Amber Barbach to talk about her experience as their caregiver, how she coped during their treatment and after their deaths, and how her father’s advice for handling problems became the name of her nonprofit.
88 min
48
The Luckiest Dude in the World
DJ Stewart shares his story from diagnosis to being a long term GBM survivor.
52 min
49
Introducing Glioblastoma aka GBM
Welcome to Glioblastoma aka GBM
7 min