Once Upon A Gene

As a new parent of a child with a rare genetic syndrome, I was lost. There was no guide. There was no rulebook. This was not what I had imagined. As I navigated my way through this new reality, I realized something that should have been simple, but was not. A truth that had always been there, but that I had lost sight of for a time - I am not alone. And neither are you. These are the stories of my family, and of families like ours. These are the stories of how we have persevered, cried, bonded, and grown. These are the stories of children who have been told that they cannot, and that have proved the world wrong.

Society & Culture
Kids & Family
Parenting
351
Rollin' With Spina Bifida
40 min
352
My Pfeiffer Pfamily
33 min
353
The Fathers Network
45 min
354
Heartism
48 min
355
A Little Love
26 min
356
The Dadurday Chronicles
32 min
357
It's Your Party, and I'll Cry If I Want To
32 min
358
Telomere More About It
27 min
359
Hospital Hair Don't Care
26 min
360
Effie
13 min
361
Effie and Synthiea
21 min
362
Trailer
3 min