Once Upon A Gene

As a new parent of a child with a rare genetic syndrome, I was lost. There was no guide. There was no rulebook. This was not what I had imagined. As I navigated my way through this new reality, I realized something that should have been simple, but was not. A truth that had always been there, but that I had lost sight of for a time - I am not alone. And neither are you. These are the stories of my family, and of families like ours. These are the stories of how we have persevered, cried, bonded, and grown. These are the stories of children who have been told that they cannot, and that have proved the world wrong.

Society & Culture
Kids & Family
Parenting
326
Rollin' With Spina Bifida
40 min
327
My Pfeiffer Pfamily
33 min
328
The Fathers Network
45 min
329
Heartism
48 min
330
A Little Love
26 min
331
The Dadurday Chronicles
32 min
332
It's Your Party, and I'll Cry If I Want To
32 min
333
Telomere More About It
27 min
334
Hospital Hair Don't Care
26 min
335
Effie
13 min
336
Effie and Synthiea
21 min
337
Trailer
3 min